West Virginia Universityand the state are joining forces to improve health care delivery to children with special health care needs.

The Center for Excellence in Disabilities at WVU has been awarded a $300,000 West Virginia State Implementation Grant. The three-year grant will enable the center to develop a family-centered, community-based health care system using advanced information technologies.

The grant is a collaborative effort involving the center, WVU Department of Pediatrics, West Virginia Primary Care Network, WVU Mountain Doctor Television (MDTV) and the West Virginia Children with Special Health Care Needs Program.

The purpose of the grant is to develop a model of integrated services supported by health information technologies to create a virtual medical home. A virtual medical home is an electronic site that families and their local physicians can visit to get specialty health care. Telehealth clinics will provide a framework for community-based partnerships and improve access to specialty care. Using MDTV , specialty clinics will be available in the most rural, isolated parts of West Virginia.

Parent Network Specialists will work with families to make sure their needs are addressed and that families and youth are included at every level. Educational webinarsonline seminarson disability topics will be distributed. Families and youth will maintain an active role in the development and evaluation of program activities.

The grant is funded by the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, and Division of Services for Children with Special Health Care NeedsIntegrated Services Branch.

For more information, contact Dr. Maggie Jaynes at 304-293-4692 or mjaynes@hsc.wvu.edu .